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E-manager Chronic Diseases


Meer dan 5,3 miljoen mensen in Nederland hebben een chronische ziekte. Chronische ziekten hebben een grote impact op kwaliteit van leven, maar ook op de kosten in de gezondheidszorg. Er is steeds meer behoefte aan innovaties die zich richten op het verbeteren van zelfmanagementvaardigheden van patiënten. Om deze reden heeft het Centre for Care Technology Research een voorstel geschreven voor de ontwikkeling, implementatie en evaluatie van een E-manager voor chronische ziekten. De E-manager bestaat uit twee onderdelen; een Ziektelastmeter voor tijdens het consult met de zorgverlener en een E-supporter die ondersteuning geeft bij gezond gedrag in het dagelijks leven. De E-manager zal patiënten en zorgverleners ondersteunen in het meten en visualiseren van de ervaren ziektelast en bij het maken van persoonlijke streefdoelen. Om de doelen te halen, zal het instrument op maat gemaakte ondersteuning bieden, rekening houdend met de eigenschappen, het gedrag en de mogelijkheden van de patiënt.


Samenvatting van de aanvraag

People’s health and healthcare in Western societies are currently facing a number of serious challenges. There is a growing number of older people and an increasing incidence and prevalence of chronic diseases. Over 5.3 million people in the Netherlands have a chronic condition and 36% of these people have more than one chronic disease. With an ageing population, this number is expected to increase. There is a high pressure on the quality of healthcare as well as on associated healthcare costs. Personalised self-management could be a key solution to overcome these challenges in long-term care. However, for many patients, it is difficult to adequately self-manage their disease. Formulating specific treatment goals for lifestyle behaviour, searching for tailor-made interventions and being supported therein is a challenge, especially as these elements are not often discussed with a healthcare professional. In recent years, many apps have been developed that aim to help self-manage a disease. However, as these apps usually do not take into account patients’ behaviour, coaching cannot be fully tailored to the patient. An integrated device would be the solution to the aforementioned challenges, but an appropriate tool is lacking. The Centre for Care Technology Research (CCTR) therefore proposes the development, evaluation and implementation of an E-manager Chronic Diseases, which aims to improve the quality of life and perceived quality of care in patients with chronic conditions. The e-manager is used for patients with COPD, asthma and/or diabetes mellitus type 2 (DM2). The e-manager has two main components. The first component is the Assessment of Burden of Chronic Conditions (ABCC) tool. This tool measures and visualises the experienced burden of disease and facilitates shared decision-making, as healthcare professionals and patients are supported to set goals and decide on a personal treatment plan together. The ABCC tool is a follow-up to the Assessment of Burden of COPD (ABC) tool, which has been developed in recent years by Maastricht University and has shown to be very effective in improving the quality of life and quality of care perceived by patients with COPD. In this project, we propose to develop the tool further by adding disease-specific modules for asthma and DM2. The second component is the e-supporter, which promotes pursuing a personalised treatment plan in daily life. This e-supporter integrates various e-coaching apps already developed by MUMC+, TNO, University of Twente and commercial parties, supporting various aspects of a healthy lifestyle. It will be further enriched with an intelligent interface that uses information from the ABCC tool, the various coaching tools and daily behaviour, thoughts and moods to provide tailor-made information on health-related behaviour to the patient in order to improve self-management behaviour. The coaching content will be developed according to the I-Change model and coaching will be provided to the patient via an app using text, graphics and videos. This research proposal consists of five work packages. The aim of Work package 1 is to extend the existing ABC tool for COPD by building disease-specific modules for asthma and DM2, and to validate the ABCC tool. Work package 2 focuses on the development and validation of the e-supporter. Work package 3 involves the implementation and process evaluation of the E-manager Chronic Diseases. Work package 4 focuses on the effect evaluation of the E-manager Chronic Diseases by means of a cluster randomised controlled trial (RCT). Health Technology Assessment (HTA) will be used to evaluate the impact on health, well-being and costs, and to provide an estimate of the value for money. As the project will be iterative, data collected in work package 3 will be used to improve the ABCC tool and the e-supporter further. Work package 5 involves the coordination and data management of the project. The innovation in this project can only be a success when it is properly implemented in daily practice. The ABCC tool and the e-supporter are two separate but connected tools. The ABCC tool will be implemented in electronic medical systems and the e-supporter will be implemented in the patients’ personal digital environment such as their computers and mobile phones. The ABCC tool and the e-supporter will be connected to one another by the collaboration of several public and private partners. We believe that this e-manager will realise important steps towards care that is effective, sustainable and of high quality, as patients become better able to self-manage their disease in everyday life. In addition, the healthcare professional is better informed about the patient and better able to deliver personalised care. In future, the e-manager can be expanded to create a generic e-manager for the most prevalent chronic diseases in primary and secondary care.



Looptijd: 100%
Looptijd: 100 %
Onderdeel van programma:
Gerelateerde subsidieronde:
Projectleider en penvoerder:
dr. A.H.M. Gidding-Slok
Verantwoordelijke organisatie:
Maastricht University