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Improved assessment = improved care: Differential diagnosis of attachment problems and Autism Spectrum Disorder in adults with a visual impairment and/or moderate to borderline intellectual disability

Projectomschrijving

Doel en opzet

Het doel is om met een nieuw instrument en met een eerste stappenplan of handleiding bij te dragen aan differentiaal diagnostiek voor mensen met een visuele en matig tot licht verstandelijke beperking, gericht op de visuele beperking, gehechtheidsproblematiek en autisme spectrum stoornis. De resultaten kunnen bijdragen aan het bieden van adequate zorg en hulp in de praktijk door orthopedagogen, (gz-)psychologen en psychiaters. Door een betrouwbaar en valide diagnostisch instrument toe te voegen aan de huidige diagnostische instrumenten willen we bijdragen aan de verbetering van differentiële diagnose.

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Samenvatting van de aanvraag

People with visual impairments often have stereotyped behaviours referred to as ‘blindisms’, while people with an autism spectrum disorder may also display the same stereotyped behaviours. People with attachment problems have problems in social relationships, while people with an autism spectrum disorder do too. As a result, it is difficult for developmental psychologists, (mental health) psychologists, (youth or specialised) physicians and psychiatrists to indicate the reason for difficult-to-understand behaviour in people who have both a visual impairment and (possible) autism spectrum disorder or attachment disorder. In addition, diagnosing a visual impairment, autism spectrum disorder and/or attachment problems in persons with an intellectual disability is even more difficult as behaviour can also be explained as due to the intellectual disability. Furthermore, there is a high prevalence of visual impairments, autism spectrum disorders and attachment problems in people with intellectual disabilities and it is therefore even more important to be able to diagnose adequately. With this project, we want to improve differential diagnosis in adults with a visual and moderate to borderline intellectual disability. In order to contribute, the project aims to develop a new instrument and a first guide/manual for the differential assessment of attachment problems and autism spectrum disorders in persons with visual impairment and moderate to borderline intellectual disability. The results can contribute to providing adequate care and support in practice by developmental psychologists, (mental health) psychologists and psychiatrists. By adding a reliable and valid assessment instrument to the current diagnostic instruments we want to contribute to the improvement of differential diagnosis. The research questions are therefore: Can an instrument, ‘Questionnaire Epistemic Trust (QET), be adapted for use in the care and support of adults with a visual and/or moderate to borderline intellectual disability? Is the adjusted QET a reliable and valid instrument? Can a first guide or manual be developed to support professionals in the differential assessment of attachment problems and autism spectrum disorders in adults with visual impairment and moderate to borderline intellectual disability? The study consists of three phases: Phase 1: Adapting the questionnaire of the Dutch ‘Questionnaire Epistemic Trust (QET)’ (Knapen et al., 2020) for people with a visual and/or moderate to borderline intellectual disability. As described by Nicolaidis et al. (2020), the guideline for adapting an instrument will be followed. Phase 2: Research into the factor structure, validity and reliability, and construct validity of the adapted Dutch Questionnaire Epistemic Trust - Adapted (QET-A). A group of 160 adults with a visual and/or moderate to borderline intellectual disability will be recruited for the first measurement. The QET-A and other instruments will be completed. During a second measurement, 60 of the 160 persons will be asked to complete the QET-A. Phase 3. Developing a first guide/manual for differential diagnosis of attachment problems and autism spectrum disorders in persons with visual impairment and moderate to borderline intellectual disability. The expected results are that with a new instrument and a first guide/manual, we can contribute to the improved differential diagnosis of attachment problems and autism spectrum disorder in adults with a visual and/or moderate to borderline intellectual disability. In addition to researchers and professionals from the participating organisations, students from the university, applied university, and colleges (WO, HBO and MBO education) are actively involved. The involvement of various stakeholders will give wide publicity to the project and the products being developed. The products can be used directly in practice and can aid in better care for people with a visual and/or moderate to borderline intellectual disability.

Kenmerken

Projectnummer:
637005120
Looptijd: 85%
Looptijd: 85 %
2022
2024
Gerelateerde subsidieronde:
Projectleider en penvoerder:
prof. dr. P.S. Sterkenburg PhD
Verantwoordelijke organisatie:
Bartiméus