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Improving Quality of Care and Support: Children and Adolescents with a Functional Visual Disorder

Projectomschrijving

Bij de aandoening Functionele Visuele Klachten neemt de gezichtsscherpte en/of het gezichtsveld af, terwijl er geen verklarende organische oorzaak gevonden kan worden.

Vraagstuk

Momenteel gebruikt Bartiméus een protocol voor de diagnose en behandeling van Functionele Visuele Klachten bij kinderen en adolescenten dat is gebaseerd op de meest recente Zorgstandaard Conversiestoornis. Hoewel dit een goed begin is, is er in de literatuur nog relatief weinig bekend wat de effectieve factoren zijn in het proces van diagnostiek en behandeling.

Het onderzoek

We gaan factoren onderzoeken die positieve behandelresultaten bevorderen of belemmeren. We nemen interviews af bij kinderen of adolescenten van 10 tot 16 jaar en hun ouders. Aan de hand van de kwalitatieve en kwantitatieve uitkomsten passen we het behandelprotocol aan. Het project draagt zo bij aan een betere kwaliteit van de behandeling en ondersteuning aan kinderen en jongeren met Functionele Visuele Klachten.

Verslagen


Samenvatting van de aanvraag

Functional Visual Disorder is a decrease in visual acuity and/or visual field not caused by any organic lesion. Currently Bartiméus uses a protocol for the diagnosis and treatment of Functional Visual Disorder in children and adolescents, based on the most recent “Zorgstandaard Conversiestoornis” (Zorgstandaard Conversiestoornis: a standard used in the Dutch psychiatric care system). Although this is a start, there is still relatively little clarity in the literature about effective factors in the process of diagnostics and treatment. Not much is known about what treatments best benefit patients who have been diagnosed with ‘Functional Visual Loss’ (Yeo et al., 2019). An intervention is seen as successful when a client can generally function in an age-appropriate way (e.g. at school/work, socially and leisurely). What defines a successful intervention is subjective, since it depends on the clients view of his or hers general functioning. The treatment starts with education about the visual complaints and what the diagnosis ‘Functional Vision Disorder’ stands for. Furthermore, information is given on the fact that the Functional Vision Disorder is reversible. The fact that treatment may be effective seems to be an important base for interventions (e.g. Espay et al., 2018; Yeo et al., 2019), however it is not clear what is needed for a successful intervention. This is because most studies focus on the effectiveness of treatments for other types of Functional Neurological Disorders in children such as stomach complaints, fatigue, tension headaches or pains (Bonvanie et al., 2017). Thus, the question is how the treatment should focus on the psychological side of the disorder. Next to this, there is little known about factors that may influence assessment and treatment of children and adolescents (and their parents) with a Functional Vision Disorder. The aim of this study is therefore to examine which factors promote or hinder positive treatment outcomes. We will do this by conducting interviews with 12 to 15 children or adolescents aged 10 to 16, and their parents. We will examine these factors for the entire healthcare-process, from registration and the treatments received to end-evaluation. We will evaluate various treatments, which can differ per child, but also the working alliance between child and practitioner, as experienced by the child and its parents. Furthermore, we will also use a 5-point scale for each treatment that the child or adolescent has received to examine how each received treatment was assessed. This gives us quantitative data on the subjective effectiveness of the different treatments. With these outcomes the treatment protocol will be adapted, which will contribute to improvement of the quality of treatment and support given to children and adolescents with a Functional Vision Disorder.

Onderwerpen

Kenmerken

Projectnummer:
637005108
Looptijd: 100%
Looptijd: 100 %
2021
2022
Gerelateerde subsidieronde:
Projectleider en penvoerder:
M. Ketelaar
Verantwoordelijke organisatie:
Bartiméus