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Euthanasia in patients with dementia and an advance euthanasia directive:towards practical guidance

Euthanasia in cases of advanced dementia based on a written advance directive is rare. The law is primarily designed for situations in which the physician and a competent patient discuss the request together. In dementia, meeting the due care criteria of the euthanasia law is complex, leaving physicians – even after rulings by the Supreme Court – confronted with dilemmas. The law allows room for individual judgment but places full responsibility on the physician, who may also experience societal pressure. In decision-making, communication with the person with dementia carries significant weight, alongside observations, discussions with healthcare professionals, and input from relatives. 

Result

Within this project, the Euthanasia & Dementia Decision Aid was developed: a practical tool that supports physicians in careful decision-making, while ultimate responsibility always remains with the physician.

Products

Title: Dealing with requests for euthanasia in incompetent patients with dementia. Qualitative research revealing underexposed aspects of the societal debate.
Author: D. Coers, M.E. de Boer, E.M. Sizoo, M. Smalbrugge, C.J.W. Leget, C.M.P.M. Hertogh
Magazine: Tijdschrift voor Ouderengeneeskunde (TvO)
Link: https://www.verenso.nl/magazine-november-2021/no-5-november-2021/
Title: Nieuw onderzoek euthanasieverklaringen bij vergevorderde dementie
Author: Djura Coers
Magazine: Huisarts & Wetenschap
Link: https://link.springer.com/article/10.1007/s12445-019-0103-1
Title: Dealing with requests for euthanasia in incompetent patients with dementia.
Author: Coers DO, de Boer ME, Sizoo EM, Smalbrugge M, Leget CJW, Hertogh CMPM.
Magazine: Age and Ageing
Link: https://pubmed.ncbi.nlm.nih.gov/36626318/
Title: Dealing with requests for euthanasia in incompetent patients with dementia. Qualitative research revealing underexposed aspects of the societal debate
Author: Djura O Coers, Marike E de Boer, Eefje M Sizoo, Martin Smalbrugge, Carlo J W Leget, Cees M P M Hertogh
Magazine: Age and Ageing
Link: https://academic.oup.com/ageing/article/52/1/afac310/6969134
Title: Seeking consensus on dilemmas related to euthanasia in dementia based on an advance directive: a Delphi study from a medical, ethical and legal perspective
Author: Marike E de Boer, Djura O Coers, Eefje M Sizoo, Danique M J ten Bokkel Huinink, Carlo J W Leget, Cees M P M Hertogh, DALT project group
Magazine: Journal of Medical Ethics
Link: https://jme.bmj.com/content/early/2025/01/27/jme-2024-110276
Title: A qualitative focus group study on legal experts’ views regarding euthanasia requests based on an advance euthanasia directive
Author: D. O. Coers, S. H. Scholten, M. E. de Boer, E. M. Sizoo, M. A. J. M. Buijsen, B. J. M. Frederiks, C. J. W. Leget & C. M. P. M. Hertogh
Magazine: BMC Medical Ethics
Link: https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-024-01111-2
Title: Euthanasie bij gevorderde dementie: het DALT-project
Author: Djura Coers, Marike de Boer, Martin Buijsen, Carlo Leget, Cees Hertogh
Magazine: Tijdschrift voor Ouderengeneeskunde (TvO)
Link: https://www.verenso.nl/magazine-april-2019/no-2-april-2019/
Title: Nieuw onderzoek euthanasieverklaringen bij vergevorderde dementie
Author: Djura Coers
Magazine: Huisarts & Wetenschap
Start- and endpage: 59-59
Link: https://www.henw.org/artikelen/
Title: Navigating Dilemmas on Advance Euthanasia Directives of Patients with Advanced Dementia
Author: Djura O. Coers MD; Eefje M. Sizoo MD, PhD; Maryam Bloemen MD; Marike E. de Boer PhD; Agnes van der Heide PhD; Cees M.P.M. Hertogh MD, PhD; Carlo J.W. Leget PhD; Trynke Hoekstra PhD; Martin Smalbrugge MD, PhD
Magazine: JAMDA
Link: https://www.sciencedirect.com/science/article/pii/S1525861024007229
Title: Euthanasie bij gevorderde dementie: het DALT-project De ontwikkeling van een praktische handreiking over euthanasie bij dementie op basis van een schriftelijke wilsverklaring
Author: Djura Coers, Marike de Boer, Martin Buijsen, Carlo Leget, Cees Hertogh
Magazine: Tijdschrift voor Ouderengeneeskunde
Link: https://www.verenso.nl/tijdschrift-voor-ouderengeneeskunde/tijdschrift-2019-no-2-april/wetenschap/euthanasie-bij-gevorderde-dementie-het-dalt-project
Title: Euthanasia based on an advance directive in patients with dementia: how do legal experts reflect on the legal field in which physicians ought to act?
Author: M.E. de Boer, S.Scholten, D.O. Coers
Title: Euthanasie op basis van een schriftelijke wilsverklaring. Een kwalitatief onderzoek naar de visie van juridische experts.
Author: Coers,D.O., Scholten,S., Sizoo,E.M., de Boer,M.E., Frederiks,B.J.M., Buijsen,M.A.J.M., Leget,C.J.W., Hertogh,C.M.P.M.
Title: Euthanasie bij gevorderde dementie op basis van een schriftelijke wilsverklaring. Ervaren SO’s andere dilemma’s dan SCEN-artsen en artsen van het Expertisecentrum Euthanasie?
Author: Eefje Sizoo, Djura Coers, Marike de Boer
Title: Dealing with requests for euthanasia in incompetent patients with dementia. Qualitative research revealing underexposed aspects of the societal debate.
Author: D.O. Coers, M.E. de Boer, E.M. Sizoo, M. Smalbrugge, C.J.W. Leget, C.M.P.M. Hertogh

Features

  • Project number:
    839120012
  • Duration: 100%
    Duration: 100 %
    2018
    2025
  • Part of programme:
  • Related funding round:
  • Project lead and secretary:
    M.E. de Boer PhD
  • Responsible organisation:
    Amsterdam UMC Locatie VUmc